Medical Writing Medical Writing in Paediatrics Crowdpower in the era of ‘health 2.0’

Volume 21, Issue 2 - Medical Writing in Paediatrics

Crowdpower in the era of ‘health 2.0’

Abstract

Members of the social web are increasingly banding together and using web 2.0 technologies to actively participate in their own healthcare (‘health 2.0’). This article gives an overview of how ‘crowdpower’ is impacting the field of healthcare, above and beyond merely offering emotional or informational support. It describes how the face of healthcare research is changing due to the technology-mediated collaboration between companies and ordinary patients, and how disease may be prevented with the help of the social web. Issues of health literacy and the role computer gamers are playing in the quest for new therapies are also discussed.

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References

  1. Pew Research Center Available from: http://www.pewinternet.org/Reports/2011/P2PHealthcare.aspx
  2. Healthline - Diabetes Mine Available from: http://www.diabetesmine.com/
  3. Crohnology Available from: http://crohnology.com/
  4. MCSMN - Mayo Clinic Available from: http://socialmedia.mayoclinic.org/2011/10/04/scad-ladies-highlight-social-media-summit/
  5. Was hab ich? Available from: https://washabich.de/
  6. IES - National Assessment of Adult Literacy Available from: http://nces.ed.gov/pubs2006/2006483_1.pdf
  7. National Association of Community Health Centers Available from: http://iweb.nachc.com/downloads/products/SP_13_08.pdf
  8. Science life. The University of Chicago - Medicine and Biological Sciences. Available from: http://sciencelife.uchospitals.edu/2011/03/28/crowdsourcing-the-war-on-cancer/
  9. Army of Women - Dr. Susan Love Research Foundation. Available from: http://www.armyofwomen.org/
  10. Patients Like Me, Inc. Available from: http://www.patientslikeme.com/
  11. 23andme, Inc. Available from: https://www.23andme.com/
  12. Wicks, P., Vaughan, T., Massagli, M. and Heywood, J. (2011). Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm. Nat Biotechnol, 29(5), pp.411-414. Available from: http://www.nature.com/nbt/journal/v29/n5/full/nbt.1837.html
  13. Timmer, J. (2011). Crowdsourcing a clinical trial to treat ALS. [online] Ars Technica. Available at: http://arstechnica.com/science/2011/04/crowdsourcing-a-clinical-trial-to-treat-als/ [Accessed 22 Dec. 2015]. Available from: http://arstechnica.com/science/news/2011/04/crowdsourcing-a-clinical-trial-to-treat-als.ars
  14. Tung, J., Do, C., Hinds, D., Kiefer, A., Macpherson, J., Chowdry, A., Francke, U., Naughton, B., Mountain, J., Wojcicki, A. and Eriksson, N. (2011). Efficient Replication of over 180 Genetic Associations with Self-Reported Medical Data. PLoS ONE, 6(8), p.e23473. Available from: http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0023473

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Journal Watch
The Webscout
Manuscript Writing
Regulatory Writing
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Out On Our Own

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Raquel Billiones

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