Medical Writing Writing for Patients Establishing a patient publication steering committee: A case study with insights for medical writers
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Volume 29, Issue 4 - Writing for Patients

Establishing a patient publication steering committee: A case study with insights for medical writers

Abstract

Development of a patient publication steering committee (PPSC) is an innovation in industry publication practices. In this brief article, we summarise how UCB Pharma, a global biopharmaceutical company, plans to partner with patients to establish a PPSC and share insights on how medical writers could support PPSCs. The purpose of a PPSC is to plan and oversee the timely and ethical development of high-quality publications on disease burden and the patient journey, as identified by patients. In this case study, we collaborated with key internal and external stakeholders, including medical writers, to identify the key roles, governance, and documentation required for a PPSC. We have demonstrated that it is feasible to develop a PPSC framework that will guide the ethical and effective development of a patient-led publication plan. Medical writers would work within this framework to help develop and implement the plan.

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Editorials - Passing the Torch: The Sequel/Filling Big Shoes
Foreword: Writing for Patients, Foreword from the EMA
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Promoting equity in understanding: A cross-organisational plain language glossary for clinical research
Medical abbreviations with multiple meanings: A prescription for disaster
Writing for patients: When and how?
Lay summaries for Phase 1 trials in healthy volunteers
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Establishing a patient publication steering committee: A case study with insights for medical writers
Translation: A transcultural activity
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Social Media: A tool that can benefit public health?
Partnering with patient associations: Engaging medical writers to support health literacy for patients
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News from the EMA
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Regulatory Matters
In the Bookstores
Good Writing Practice
My First Medical Writing
Getting Your Foot in the Door
Out on Our Own

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