Medical Writing Writing for Patients Promoting equity in understanding: A cross-organisational plain language glossary for clinical research
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Volume 29, Issue 4 - Writing for Patients

Promoting equity in understanding: A cross-organisational plain language glossary for clinical research

Abstract

Clear communication with the public and with potential clinical trial participants and their caregivers is foundational to the ethical tenets of respect, justice, and beneficence. However, health literacy, even of highly educated individuals, often declines when presented with complex content in unfamiliar contexts and in times of stress, all of which are characteristic of the types of situations people find themselves in when considering and participating in a research study. Here we describe an initiative to pilot the development of a cross-organisational plain language clinical research glossary to promote clarity, consistency, and transparency. The goal is to develop a common resource that can be used across clinical research stakeholder groups to increase understanding of clinical research and empower sound individual decision making.

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Articles

Editorial - Writing for Patients
Editorials - Passing the Torch: The Sequel/Filling Big Shoes
Foreword: Writing for Patients, Foreword from the EMA
President's Message
EMWA News
Promoting equity in understanding: A cross-organisational plain language glossary for clinical research
Medical abbreviations with multiple meanings: A prescription for disaster
Writing for patients: When and how?
Lay summaries for Phase 1 trials in healthy volunteers
Participant information – an ethics committee view
Establishing a patient publication steering committee: A case study with insights for medical writers
Translation: A transcultural activity
Writing for the internet
Social Media: A tool that can benefit public health?
Partnering with patient associations: Engaging medical writers to support health literacy for patients
Pharmaceutical clinical trials transparency and privacy
News from the EMA
Medical Devices
Regulatory Matters
In the Bookstores
Good Writing Practice
My First Medical Writing
Getting Your Foot in the Door
Out on Our Own

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  • Amy Whereat (SpeaktheSpeech Consulting, Asnieres sur Seine, France)

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